ALS is like a lit candle: it melts your nerves and leaves your body a pile of wax.. you cannot support yourself standing.. you cannot sit up straight. By the end, if you are still alive.. your soul, perfectly awake, is imprisoned inside a limp husk.. like something from a science fiction movie, the man frozen inside his own flesh.
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There's nothing more debilitating about a disability than the way people treat you over it.
Ted," he said, "when all this started, I asked myself, 'Am I going to withdraw from the world, like most people do, or am I going to live?" I decided I'm going to live-or at least try to live-the way I want, with dignity, with courage, with humor, with composure.